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My child's strep test was negative. Can they still have PANDAS?

Yes. This is one of the most important things parents need to understand about PANDAS testing. Rapid strep tests miss a meaningful proportion of actual strep infections when used as the only test. Overnight throat cultures are more reliable but still not perfect. Strep can also reside in areas a routine office swab doesn't reach — tonsillar crypts, the perianal area, or the sinuses. The antibody tests used to detect a recent strep infection also have documented limitations. A negative rapid strep test or a single set of normal antibody titers does not close the door on a PANDAS diagnosis if the clinical picture fits. A provider experienced in PANS and PANDAS will know how to look further when standard tests don't tell the whole story.

This content is provided for educational and informational purposes only and is not intended to replace professional medical advice, diagnosis, or treatment. Always seek the advice of a qualified healthcare provider with any questions regarding a medical condition.
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